In 2014, Gwyn Theodore was awarded the DSACT Conference stipend. Gwyn and her family attended the 2014 International Mosaic Down Syndrome Association’s Research and Retreat conference in Williamsburg, VA.
The purpose of the conference was to bring families with all forms of Down syndrome together for support, to hear about current research and to participate in research. There is very little information on Down syndrome and even less on mosaic Down syndrome. In order to better understand both of these syndromes and phenotypes that go along with them, more research needs to be done.