You Are Not Alone
The Down Syndrome Association of Central Texas (DSACT) would like for you to know that you are not alone. As parents, we understand how difficult it is to hear the unexpected news that your baby might have Down syndrome. We offer a safe place to turn to where you can share your feelings and fears with people who have been there. We will reach out to you with compassion and care and will not judge.
There is no right or wrong way to react to a diagnosis. You may experience intense emotions at first: shock, dismay, fear, or anger. These emotions are perfectly normal.
Some expectant parents consider adoption as an option. Many are quite encouraged to learn that there is actually a national waiting list of families wishing to adopt a baby with Down syndrome. Other expectant parents are sad at first, but they make plans to welcome the baby into their lives by gathering information and making adjustments during the pregnancy so that the birth will be a joyous occasion.
Wherever you find yourself this moment, please know that we care and we will try to meet your needs for information and support.
- Our experienced parent liaisons can answer your questions and provide a realistic picture of raising a child with Down syndrome. We are also available to visit on the phone, in person, or by email.
- We provide excellent information packets available to you. If you prefer a hard copy of the New Parent Packet, just give us a call at 512-323-0808 or email us at firstname.lastname@example.org and we'll send one your way.
If you are interested in talking to another parent, please call us at (512) 323-0808.
As a parent, your child's health is always at top of mind. See our Health Care page for more on this topic, but here are two important resources specifically for new parents:
- National Down Syndrome Congress
- National Down Syndrome Society
- Book: GIFTS: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives (2005)
- Down Syndrome Pregnancy
- NDSS New & Expectant Parents
- Impact of Childhood Disability
- American Academy of Pediatrics: “Health Care Information for Families of Children with Down Syndrome”
- Diagnosis to Delivery: A Pregnant Mother's Guide to Down Syndrome
- Texas Department of State Health Services: Information About Down Syndrome for New and Expectant Parents
Baby Talk - Parent/Child Group
Baby Talk is a DSACT group for children with Down syndrome between the ages of 0-2 years as well as their parents and siblings. We also welcome any expecting parents to join the group.
Baby Talk meets bi-monthly at a variety of locations. If your family is interested in joining in on the social activities, contact DSACT to be added to the playgroup invite list.
If you would like to join the Baby Talk private (members only) Facebook page, click here. You will need to sign in with your Facebook credentials and request to join the group.